Wrexham Glyndwr University has become the latest backer of a charter supporting people with rare diseases.
The University has lent its support to the Rare Aware Charter, organised by Mold-based not for profit organisation Same but Different. The charter is one of a range of ways in which Same but Different, who support people affected by rare disease and disability, work to raise awareness of rare diseases and the people who live with them.
Organisations such as Wrexham Glyndwr University who sign up to the charter make a commitment to five industry actions designed to create a supportive working environment for employees – whether they have a rare disease themselves, or have a close family member affected.
Wrexham Glyndwr University Deputy Vice Chancellor Professor Claire Taylor met with Same but Different Director Ceridwen Hughes and Project Manager Gill Rock at a photographic exhibition at the university, where she heard more about the organisation’s work and affirmed the university’s commitment to the charter.
The exhibition – of photographs documenting the lives of people affected by rare diseases – was hosted on the university’s Plas Coch campus. It is one of dozens which Same but Different have held across the UK as part of their awareness-raising mission.
Professor Taylor said: “The University is really proud to sign up to the Rare Aware Charter.
“It’s really important that as an employer we recognise and support staff who may have a rare disease or may be providing care for a close family member.
“I would encourage other organisations to support Same but Different and become a Rare Aware Employer”.
And Same but Different’s Ceridwen Hughes added: “It is wonderful that Wrexham Glyndŵr University are prepared to make this commitment to support their staff.
“Being diagnosed with or having a close family member diagnosed with a rare disease can have a huge impact on families. Knowing they have the support of their employer will make a huge difference.
“With 1 in 17 people affected by rare disease in the UK, it is important that organisations are willing to make this commitment.”
To learn more about the Rare Aware Charter and to sign up your organisation, visit: www.samebutdifferentcic.org.uk/rare-aware-charter or email firstname.lastname@example.org.